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Sanfilippo Syndrome Type A
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| Submitted: Tue Aug 12 2003
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Anthony Hudson 09/24/02/ 8:00a.m. (MPS3)Sanfilippo Syndrome Type A 11-year-old white male patient brought in by mother and father who confirm with Documentation, he was diagnosed at age five with Sanfilippo Syndrome Type A. PARENTS INFORMED: He requires total assistance with daily living skills...i.e.: bathing, dressing, and hand feed him. Tony only sleeps about 3 hours per night; Tony will sit up and bounce on his bed or wander about in his bedroom at night, and will frequently bang on his bedroom window and does hurt him self. At night his head is not protected from injury because he cannot wear his helmet at night due to the strap could choke him. He requires nighttime supervision, because he does fall out of bed many times, parents are currently using pillow props to stop him from rolling out of bed because his safety is an issue, and his parents are...
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